So I am covid positive and I legit thought I was just having a flare.
By - Moofabulousss
That’s so awful, I’m sorry you’re going through this.
Though, I guess now, when people ask you what a flare is like, you can say “you know how Terrible Covid-19 is? It’s like that!”
and you know what? I keep telling people “oh covid not that bad, I thought I was having a flare” because I’m so damn used to being in horrible pain.
Doubly vaccinated covid. Could you imagine getting it unvaccinated? People are getting fibro symptoms from long covid and I wouldn't wish it on anyone.
Right. I knew I didn’t want to get it unvaccinated. We never left home
I’m taking a screenshot, hiding your name, and will show it to anyone that asks me what a flare feels like because “bad flu symptoms” is just not cutting it. Maybe people will take us seriously when we say we feel crappy then.
That’s awesome! :)
I know this is partly a joke but come one fibro is not anything close to what people who are dying from covid feel like. Maybe an extremely mild case or long covid. But people who literally can’t breathe and are dying in hospital beds all over the country right now just doesn’t compare.
My PCP had me tested for COVID during two different flares. It’s part of how my diagnosis was solidified, so to speak. So, yeah, good descriptor for what it feels like to have fibro. 💚
Yes. Super accurate. I always used “the flu” to describe it but this is more accurate.
Same. “You know when you have the flu and the pain is so bad even your fingernails hurt? That”
Yesssss. Exactly how I describe it.
For a while I wondered if maybe I didn’t have fibro, maybe it was my weight/ diet/lack of exercise, something I could change. I’ve lost weight, changed my diet, take vitamins/supplements/no meds, I exercise 2+ hours per week. I still get flares and have tender points. I still have nerve pain and inflammation. I have fibro. It’s not as bad, I think because I exercise and can move my body easier. But it doesn’t go away, it’s the real deal.
When I got diagnosed it started cause I went to my doctor and said “yeah so. I was just wearing socks sitting in bed and like… wearing socks hurt?” My doctor said “have you considered fibromyalgia?” I laughed and said “no. I’m just always in pain” and he goes “….right…”. He gave me the questionnaire and I scored super high on the scale I guess.
Yesssss. Sometimes my husband will very gently rest his hand on my leg and two minutes later I feel like I’m being smashed and electrocuted there. Fibro is so weird.
Ugh the amount of times I’ve just been like “no don’t touch me!” to my husband and he looks so sad and I have to quickly explain “no no now it burns!”
I’m sorry you got covid despite being vaccinated. This is a big fear of mine, I’m pretty much at my limit with pain now I don’t want anymore. And of course my husband immediately started talking like we were invincible after we got vaccinated. It sucks that he’d probably have no symptoms but whatever he does it’s like I might as well be doing it as well.
Do you have any idea how it happened? What were your family’s symptoms like? And have you thought about the booster shot?
So glad to hear you’re feeling better though!
We decided to go out to eat at a special dinner. Only 20 guests, all had to be vaccinated. That evening my sister in law watch my kiddo. SIL is unvaccinated but it was a risk we chose to take because we hadn’t been out in two years. Either someone at the dinner or sister in law exposed us. SIL had bad allergies that day (very typical for her) and had a negative covid test the next day. We thought nothing of it. Maybe she was too early to test positive, maybe it was a guest at the dinner. She and her family showed symptoms at the same time we did, but we didn’t see them between the night of the dinner and now.
My doctor said fibro wouldn’t qualify me for a booster but I’ll probably lie and get one anyway in 3-4 months.
“My teeth ache, my clothes burn, and it hurts to walk on the floor barefoot.”
I always wear house shoes now cause I HATE the way my wood floor feels on my feet. I think because with every step the texture changes (clean, dirty, dog hair…) and I just feel gross.
As a two-dog and way-too-many-plants owner I definitely agree. I have slouchy boots for the summer and wear squishy flip flops in the summer. One of my dogs has a really bad habit of drinking water and then hearing something or looking up in the middle of drinking like “hhrruunghhh???” and then walking away with a drippy mouth full of water. Stepping in his puddles ruins my day. He’s such a dingus.
Mine is little but she rips up all her toys and the stuffing is everywhere. Last night she brought in a cicada and I screamed so much I’m sure someone called the cops lol. I know there’s a rogue cicada wing in the house somewhere and I wanna die thinking of how I might step on it.
I have been doing this more over the past several months, too! How weird! And cool!
When I was in high school (was diagnosed in middle school) I had a sore throat so my mom took me to the dr. We saw the nurse practitioner that we didn’t really like and when she told my mom (a nurse) that she thought I had mono we laughed bc my only symptom was a sore throat. Turned out I had mono. Just fibro masked all the other symptoms. My best friend caught it from me (sharing drinks) and she was so drained and sore and miserable (honestly always a drama queen that always begged for attention) she was trying to get sympathy from me about how awful she felt. I dead a** looked at her and said everything you just described is my life for the rest of my life. She finally understood what it was like to live with fibro.
I’m glad that you are ok. With fibro over the last 20 years I have learned that it’s always best to get tests bc even if I’m told “sorry that abdominal pain is just your fibro flairing up” is worth the relief of your brain thinking too much. (I am always worried I have appendicitis…I watch too much greys anatomy)
Us fibro people are special
We are special!
I have had probably 10 covid tests so far since the pandemic started. Every big flare or allergies or anything because I really just cannot tell the difference between “regular” misery and illness
So true. I have horrible allergies and chronic sinusitis. Also migraines. I’ve only had 1 Covid test so far. That was at an urgent care. When I’ve had to go to my dr since I’ve been seeing her for like 25 years and she asks about my symptoms can I smell and taste and then the really important question is this your normal sinus pain or something new. I’ve had sinus infections since I was 10.
I love my dr. She’s a gp yet she’s the one that diagnosed my fibromyalgia when I was only 14. She also has always talked to me like an equal never talking down to me which we all know is not easy to find.
Oh dear, those questions when you have any sort of appointment always catch me off guard. Do you have aches and pains? Are you fatigued? Do you have a headache? Yes, yes and yes but don’t worry I don’t have Covid.
I had a migraine one day when I was supposed to have a rabies shot (right as covid was rolling out) and I called to reschedule the appointment. I had someone call me back and ask me about my symptoms and I said don’t worry it’s just a migraine, I don’t have covid and I just want to change the appointment I’ll feel better tomorrow. She was very insistent that the symptoms I had responded yes to meant that I should be going into the ER *right now*. She refused to believe that this was just another Tuesday.
>everything you just described is my life for the rest of my life.
Lol omg so true
When I first got sick at 14, I was told it was mono and I'd feel better soon. Nineteen years later and I'm still waiting to feel better. 😂
(couple months later another doctor finally agreed to test for it, and no, I did not have mono)
This has been one of my biggest fears since the start of Covid. All the major symptoms are my standard flares.
It’s horrible to say, but long Covid is soo similar to fibro that it gives me some hope of people better understanding that we deal with 😔
Same! I am so worried I won't ever know if I have Covid because it's just how everyday feels!
Right!? And then this leads to stress…which ultimately leads to a flare. I’m terrified I’m going to pick it up and give it to my family unknowingly thinking it’s just fibro.
YES exactly. Fibro is just the gift that keeps on giving 🤦♀️
I feel very lucky that it was only two days of body pain and fatigue. And I already knew what helped my body to recover from those two symptoms thanks to fibro.
(For me it was soaking in the hot tub/a hot bath/hot shower and muscle relaxers at night to sleep).
That is one bonus of fibro, I guess-we’re basically designed for this fight 🤷♀️
I got it before vaccines were available in October last year during that mega spike. For me it was like having a fibro flair, the flu and allergies all together. It was HORRIBLE. I'm glad you were able to get vaccinated first because I had insomnia and a flair for 2 months after, and sore lungs for a month. It's so weird how it affects us all so differently!
Holy moly. Sorry you got so ill! It sounds awful.
Yes it seems like the vaccine helped me immensely. I ALWAYS get super sick for months so I know this is the vaccine working.
Yeah I have been encouraging everyone to get it because it was survivable for me but it was not a good experience. I have a coworker who also got it before vaccines were available and she STILL has insomnia 9 months later! It's unreal. She can't sleep more than 4 hours a night.
What really weird is no one else in my household got it and no one I had close contact with got it. My sisters who live in different states than me also got it around this time and no one in their households got it either. I guess I come from a family who are susceptible but aren't super spreaders. Lol
I worked in urgent care until March of this year. Between by fibro and asthma/allergies, I wouldn't know if I caught covid unless I had a fever.
We tested every week and I somehow never caught it.
Exactly. I seriously thought my allergies got a smidge worse and I was having a flare. I exercise regularly and it helps but it is easy to overdo. I thought I overdid my workout.
Yep, when my hubby had COVID last October, they refused to test me because I couldn't tell them any symptoms different than my usual fibro flares. Intelligent.
Glad to hear that it was short. Any differences that you might have observed that pointed towards covid-19? I got diagnosed with fibromyalgia this year and I always keep questioning that I might have got asymptomatic covid at some point and that developed into fibromyalgia. I literally had zero triggers that could lead to fibromyalgia. Covid is literally the only thing I can think of that might have caused fibromyalgia.
The only difference was congestion, and the malaise /sick feeling you get when you have the flu. Which I sometimes get with flares but this was more intensely. It mimicked my vaccine side effects pretty closely TBH. Fatigue, body aches and pains, headache, light fever that came and went. Plus congestion.
I didn’t have any triggers that led to fibro either. I was diagnosed about 7 years ago.
Girl, me too! Idk how I developed fibromyalgia… only thing I can think of asymptomatic COVID. 😞
Holy cow I thought it was just me! I also thought I was having a fibro/RA flare at first when I caught it this past spring. Thankfully we were pretty locked up at home and, well, we got tested because my husband got ill too before I started showing other symptoms like cough, etc.
Less severe because you're vaccinated + being used to all this crap already, makes it a bit easier to handle although it's for a crappy reason. I can't tell you how many times I've severely underestimated how bad an injury or illness was simply because it wasn't too far off from my normal every day life
I've gotten so many covid tests because all of my flares are a ton of COVID symptoms! Hope you're feeling better soon!!
When I got covid I legit thought I was flaring until I felt it in my back. Then I knew something was up. So I took my temp and it was 103. I couldn't even tell I had a fever. I also have asthma so my chest starting hurting to a point where I told my roommate she might have to take me to the hospital. But I just kept puffing on my inhaler and I was fine.
I still am careful because I don't wanna get it again. But that's the most mild I've ever been sick. But I know more people aren't that fortunate. My sister said that's the worst thing she's ever experienced.
So sorry you tested positive. I took a pcr test on Saturday cause for little over a week I couldn't tell if was going thru my regular gorilla beat down, or if it was covid.
All my typical sym (which overlap with covid sym) collided and was turnt up had me really confused. So, I took c19 test just in case.
My pcr test came back negative, thank you Lord. But it's legit a 50/50 of wondering is it a flare or c19.
Yeah. It’s so similar. If my other family members weren’t also sick I would have assumed flare.
This has been such a fucked up game to play this entire time. I’ve been taking my temp right and left and getting Covid tests for the slightest symptoms.
I hope you feel better soon!
I’ve been sick for a week and finally got tested it was negative- so how does that help me get over this crud?
I've several times in the past missed that I had the actual flu until someone else came down with it and/or it was discovered that I was running a fever. I'm not surprised at all. Hope it's mild for you, no worse than a normal flare, and subsides quickly.
Thank you. It has been quick, maybe two days bad(like a flare), one day light and now just lingering congestion. Thank goodness.
I'm so glad you're feeling better! Hope you all stay well!
I usually tell people that it's like having the flu but I may change that description.
My second vaccine made me MISERABLE for 2 days. Worse than my worst flare. I have wondered what an infection without the vaccine would have been like.
Glad you are on the mend.
This is what I keep trying to tell my principal and those around me in general. I will always wonder.
Well there’s the proof that the vaccine is doing it’s job, just imagine if you weren’t vaccinated. You may not be here to tell this story.
Hope you feel better soon!
Thank you. Already on the mend!